Special Edition: "Tage USA"

Koleson was a 4 year old boy who bravely fought a rare genetic neurodegenerative metabolic disease. His diagnosis of Leigh disease was terminal, with no cure, and caused severe and irreversible damage to his brain.

As his disease progressed, Koleson experienced loss of temperature regulation, respiratory decline, and overall loss of body function. Under the guidance of his medical team, he entered the final stage of his illness surrounded by care and love.

Since May 2025, Koleson had been hospitalized every single month due to viral illnesses his body could no longer fight off. These frequent hospitalizations, along with ongoing travel to Rochester for specialized care, placed a significant emotional and financial burden on his family.

Although Koleson has passed, we are continuing to support his parents as they navigate this unimaginable loss. Funds raised will help ease medical expenses, travel costs, and end of life and memorial expenses, while allowing the family the time and space they need to grieve.

Koleson’s parents shared his journey with strength and openness through their Facebook page, Koleson’s Fight, and we are honored to stand beside them and carry his story forward.