J’Mari was diagnosed with Alagille syndrome after a genetic test confirmed he was positive for the Jag1 gene. It’s a genetic disorder that can affect the heart, liver, kidneys & more. J’Mari has an uncontrollable itch from his liver disease. He's been jaundiced since birth which will require a transplant to go away.
His cardiac issues are moderate and he just underwent a successful stent surgery on 9/1. While in recovery his family got the call that J’Mari is getting a New Liver! His surgery is set for 10/10. He and his family have been faithfully traveling to Pittsburgh from Buffalo since 2021. Travel, medications, and daily appointments are what make up their everyday life. J'Mari has fought so hard to get to this point. All sales from this campaign will help support J'Mari and his family.