On July 2, 2022, Emery's parents brought her to the emergency room at Children’s Hospital because she wasn’t feeding and was vomiting large amounts. While there, they performed a sonogram of the abdomen. When Emery’s kidney lit up, medical staff needed to look more into it.
Emery’s first hospital stay in the PICU was 19 days long and included many tests, x-rays, sonograms, blood transfusions, surgeries, multiple blood draws, dialysis and more. July 8, 2022, was her first surgery for a dialysis port and a kidney biopsy that would be analyzed and sent for genetic testing. On July 10, 2022, doctors suspected an extremely rare and life-threatening diagnosis of Primary Hyperoxaluria Type 1.
Emery, at only 3 months old, was in end-stage renal failure. The disease had attacked and destroyed her kidneys in her 3 short months here on earth. As the days passed by, Emery was getting sicker and sicker. Her nutrition was down, and she wasn’t eating well. The difficult decision was to place a G-tube to have nutrition directly given to her.
After multiple emergency room visits, setbacks, and a new medication, Emery had an echocardiogram on August 31st showing her heart was enlarged, and she was now in acute heart failure. More medication was added again to the regimen.
Emery remains in the PICU, where more tests, scans and procedures are being performed to see how they can help this deserving, beautiful baby girl who never asked for any of this, doesn’t deserve any of this and continues to show us she is a fighter.
To help support Emery and her family as they continue to battle Primary Hyperoxaluria Type 1, please consider a shirt purchase or donation to Emery's online fundraiser.