At just 5 months old, the Parisi family learned their son James has a rare form of congenital muscular dystrophy – Lama2 related, or Merosin deficient CMD to be specific. As a result, James lacks the protein necessary for his muscles to "stick" to his base skeletal membrane. He is extremely weak and will likely require assistance from a caregiver to do some of the most basic tasks we all take for granted. As you can imagine, his parents were absolutely devastated and scared for what this meant for their son’s future. However, after taking time to process the news and put things into perspective, they quickly came to realize that the most important thing they can do for themselves and for James is to harness strength and positivity, trust in each other, and do everything they can do to advocate for him and for the MD community. Moving forward, their purpose is clear and that is to fight for James and give him everything he needs to lead a strong and successful life. This is not without its own financial burden. We want to help!
The West Herr Auto Group is the largest automotive vehicle retailer in New York. West Herr has 23 dealerships, 4 collision centers, and proudly employs over 2,000 Western New Yorkers.